Why Autism And School Ain’t As Good As It Used To Be

Photo by Sharon McCutcheon from Pexels

Having autism myself, which was undiagnosed at the time of my school years, puts me in a greater position to understand my 15 year old son Sam who was also diagnosed with Autism two years ago.

This is the shortened version of the torture we went through during this time as a family. 

Only because I have the knowledge of being a school refuser myself, was I able to understand why Sam was refusing to go to school. 

Sam is highly intelligent. He received the one of highest Sats results in the country at the age of 10, and loved the attention that this intelligence brought him. 

Unfortunately with Sams high intelligence also comes high anxiety. 

Anxiety, if not spotted early and dealt with  effectively, leads straight to school refusal in sam’s case and many other children just like him on the spectrum. 

So how have schools changed to include children who are on the spectrum, or meet the needs of a highly anxious child with ASD ?

Some mainstream schools now have what is known as a hub for AEN students. Those with additional educational needs. 

These usually comprise of children with all different varieties of needs.

Sams learning difficulty is not because he finds the work difficult, it is because of the environment in which he is expected to do it in. 

Although these ‘hubs’ now exist in some schools, children are still expected to just ‘fit in’ with mainstream life. 

Having autism for Sam means that he can’t fit in. The energy Sam needs to try and fit into the school ‘box’ exhausts him, and he can only manage it for so long until cracks begin to appear, and school refusal begins again. 

Sam has been refusing school for around a month now. After government cuts forced him into sharing school transport, meant changing his driver with whom he had built a rapport with over the previous year, who he had gained a lot of trust in, and who had shared his triumphs in getting in to school the previous term.

An accident involving the new taxi driver who left the children to fend for themselves after the accident, and failed to inform anybody about it, all left Sam with whiplash, and a huge rise in his anxiety levels, which has in turn spiralled into school refusal once again. 

Schools are still as ill equipped in dealing with Autism today, as they were 40 years ago. 

There have been no changes in the way that people with Autism are still expected to somehow ‘fit In’ with an outdated education system.

People with Autism now have a name for their differences, and are not labelled as ‘maladjusted’ as I was back in the eighties. Much has been learned about Autism over the last few years, but nothing has been changed fundamentally to the mainstream education system It is still as rigid as it always was. Fit in or else.

Sam seems to be paving the way for himself. He tailor made his own curriculum, and up until a few months ago was doing an amazing job of keeping it all together. 

Unfortunately juggling too many balls in a mainstream secondary school setting has been too much for him to cope with. 

The education system in the UK needs a complete overhaul. 

We are creating anxious and depressed young adults who will be our future generation. 

School anxiety has become a huge problem in the uk, with thousands upon thousands of children, too ill to go to school because of it. 

Instead of treating our children with anti- anxiety medication, the government need take a look at the real problem, instead of just treating the side effects. 

The way things are going we are heading into a generation of un-educated, anxious and isolated individuals, who will have problems well into their adult lives because of it. 

If like me you are fighting to get your child an education suitable for their needs, don’t stop. Don’t give up ,we have to pave the way for future generations of children on the spectrum. Autism isn’t going away, its here to stay.

We all deserve a better future going forward.

Love Betty 

Life Really Does Begin At 50

I turned the grand old age of 50 in March this year. Thats half a century that I have been me.

The age of 50 didn’t get off to a very good start, and like most ages I have been, this one seemed no different. 

Same old shite, just a new year to deal with it. 

Little did I know what was to come. 

After burying trauma for over 40 years, the lid finally blew off. 

Spectacularly.

as if by magic, Maggie the springer spaniel gifted me the perfect image for this blog…

The shit finally hit the fan, and everybody ended up covered in it.

The Narcissistic parents were covered in it, the abusive family members got covered in it, and even the people who were never meant to get covered in it, also got covered in it. 

the culprit…

Because the nasty shit that had been poisoning me for over 40 years was back in its rightful place, with its owners, I am now as free as a bird. I am no longer carrying around a huge amount of poisoned shit, which leaves me free to live the life that I should have always had. 

A life free from the shit that abuse, guilt, and trauma can leave on a person indefinitely, especially if they aren’t aware that they are carrying it. 

Thankfully my eyes finally opened at the age of 50 and 3/4, after a near brush with death, ‘better late than never’ as my old grandad used to say.

My life truly has begun at the age of 50. I am so excited by my next path on this journey that we call life. 

You Can lead a Dog To Water but You Can’t Make it Drink

There’s an old saying that goes ‘You Can Lead a Horse to Water but you can’t make it drink.’

This has rang true throughout my week, so today I put it to the test. 

I don’t have a horse but I do have a dog. I led my dog to the water but I could not for the life of me, make her drink it

Yesterday my teenage son was feeling unwell, Sam hates feeling unwell, but will not take medication of any kind. 

Sam has Autism, he believes that nothing works so what is the point. 

so I decide to try a new tactic, and ran a bath full of healing essential oils, for his nausea and headache. 

I tell him the bath will help him feel better. Sam doesn’t want a bath though, even if it means that getting into it might make him feel better, he still won’t do it. 

‘You can lead a Sam to healing water, but you can’t make him get in it.’

My final thought on the subject came today when I finally came out, after 40 years, as being a child sex abuse survivor to my family. 

Nobody wants to believe it, denial is rife, you can lead the people to the truth, but you can’t make them believe it.  

Be your own truth, people don’t always see what is staring them in the face.

You are not responsible for what other people believe. 

Why Anger Isn’t Always A Bad Thing.

 

Most of us have gotten angry at some point in our lives. 

Anger is an normal emotion.

Many people believe that anger is a negative emotion, and try to avoid feeling this way. Most people don’t  particularly like feeling angry. It’s uncomfortable, they would rather feel happy instead. 

But what if you couldn’t feel happy ? What if happiness seemed unattainable ? What if you felt that death was the only way out ?

Anger is the emotion that the fight or flight response can produce, when a real threat to life has been recognised.

Anger then becomes a positive response , activating different neurons in an effort to preserve life. 

Anger has helped me to survive. It has kept me alive in a world that has tried its very best to kill me. 

Am I angry ? Damn right I am. 

I have every reason to be. 

Fighting back.. not dead yet !!

Angry Betty has spoken.

Is your anger keeping you alive ? Or are you keeping it alive ? 

Does it have a positive effect for you ? I’d love to hear your thoughts. 

P.S feeling angry doesn’t make you an angry person. 

The Benefits of Private Over NHS Mental Health Care In The UK.

Last week I made the decision to pay for private psychiatric help. 

I don’t have a great deal of money, being a single parent on disability isn’t exactly living the life of the rich and famous. 

Most of my pennies are spoken for weekly, and with the rising cost of living today, our money doesn’t go very far.

I decided that my mental health had  reached a point that intervention was needed, and I contacted my local mental health crisis team. 

This was 4 months ago, and I am still waiting for urgent help. 

Having paid into the NHS all of my life, I am at the end of a very long line of other people just like me, waiting for the same thing.

The NHS mental health service has broken, it has become so stretched that it has finally snapped under the strain. A number of NHS and other psychiatrists have set up a private clinic in an effort to take the strain, and provide the much needed mental health support, at a price.

I’m not quite sure how I came across this website but it had me intrigued. For only £350 I could have an hour consultation, a diagnosis and treatment plan, all recognised by the NHS, and within a few days. 

After a long and informative chat with the customer helpline, I actually booked an appointment, and waited patiently for the next 4 days until it arrived.

My appointment was on a secure weblink via a patients portal online, you are given a password to enter your virtual room, where you will meet your chosen psychiatrist.

That night although my anxiety was through the roof, I sat comfortably on my bed, with my PJ’s on, and up popped the psychiatrist on my MacBook screen. 

This is a novelty for a 50 year old recluse, who didn’t even own a computer a few months ago. 

I felt so comfortable, at ease, and the doctor was fantastic, Dr Axelby was my choice, she was professional, understanding, compassionate and put me at great ease. 

Our 50 minute appointment turned into nearly 90 minutes at no extra cost to myself, and I was given a diagnosis of Complex PTSD. 

I have been under psychiatric services since early childhood with no diagnosis, it has only taken £350,  1 doctor, and 90 minutes to finally give me the help that I’ve been asking for for over 40 years. 

Our mental health is just as important as our physical health. You cannot put a price on happiness.

So who benefits from this innovative idea ?

A. The Psychiatrist, she gets the chance to help people and earn an income at the same time.

B. The National Health Service, who are buckling under so much pressure from mental health related illnesses.

And last but by no means least..

C. The patient, Me, I may be lighter in pocket, but I am also much lighter in my mind and spirit. I have answers to some of the questions that I have been asking all of my life.

How much would you be willing to pay for Happiness ?

I consider it money well spent.

Poor Mental Health can be a Killer.. why not take care of yours today.

love Betty x